(info about CDH/Pulmonary hypertension)

I am not shocked by this news. a couple days before his ECHO 4-30-2012, I told his daddy  what do you want to bet, that his PH, is gone..  Cody just loves to shock everyone.. even though  he is only 4 years old and has no idea what we are talking about.. I added a video i made a year ago and in the 3 years that the video covers, its just amazing what he has over come in his 3 years… Dakota turned 4 on 12-2-2012.. our last goal is the Gtube (mickey button) and also hoping he never has to have his CDH patch redone..

I LOVE YOU!!! DAKOTA>>>

our new website/Blog

http://www.ourjourneywithspd.com/

Cody has SPD.
He does not sit still, he is always on the go.. None stop moving, this also is his hands moving like crazy (flapping) some times walking on his tippy toes..

Touching shaving cream, play dough, is still being worked on

TALKING: the list of words he has said is close to 12 or 13 words. This is the one thing that drives me crazy about this entire sensory thing.. There are days he’ll say words, sounds and talk.. Then the next day nothing…… We use to do basic sign, he stopped using that as well.. So I just keep working on the sounds..

He has come far with the medical part of his life.. Trach, vent, Pulmonary Hypertention about gone, mic-key button not being used for 6 months to see how he does.. maybe plans for it to come out in the next year, and beating CDH!

so the SPD list above is nothing… He’ll beat that too. Cody is such a amazing 4 year old & WE are so LUCKY to have him in our lives..

8 months old

wild and crazy in his bouncy chair

I’m just so proud of you Cody!! MOMMY loves you SO MUCH!

HOUSECLEANING TIPS FOR INTERNET JUNKIES

Sweeping and Mopping the floors — Have dog sweep floors with tail and lick up all crumbs. Any stubborn spots that require scrubbing recruit cat… may have to add tuna water to spot. If you don’t have a dog or cat… well you are in trouble … go find one roaming the neighborhood quick!

Vacuuming — Call for demo from salesman. Have him show you how the vacuum works in all parts of the house … insisting the carpet looks the same…but really is different in all parts of the house. Tips for success: Don’t always call same company … keep a chart and rotate.

Dusting — Only do what is at eye level or below. And only right before someone is coming over! Run rag over everything quickly (don’t even waste your precious time on the Pledge or Endust… that’s minutes away from your computer … and that just is unacceptable!). For the illusion of using those products … spray a few squirts to air like air freshener.

Laundry — First find a good place to hide it! If you have to do it… like you have no underwear… (heck who needs underwear). Okay … lets say its time to fold those rotten clothes … run the dryer again… and again and again … and when the utility bill comes… have a stroke!

Cleaning toilet — Close the lid.

Cleaning Shower — Close the shower door or curtain.

Cleaning the rest of the Bathroom — Close the door. Again … for the illusion of a freshly cleaned bath … pour some Lysol in the trash can … that illusion will stay until you finally get someone to empty the trash for you. Speaking of which……

Taking out the Trash — If you cant find anyone in your house to take it out… bribe a neighbor … say you hurt your back or some other sob story… that one might be good for getting at least a few sympathy dinners out of the neighbor as well! Try not to use it too often … they might get suspicious.

Dishes — Dishwasher … if it doesn’t come off run it again and again …if that doesn’t work … throw the dish out and start fresh. Better yet … paper plates, plastic utensils and plastic cups are far better way to go… (as long as your neighbor is taking out the trash).

We hope you find our list helpful in allowing you more and more online time. As we have all learned frozen dinners and take out foods are a life saver on those days that you just cant seem to get your butt outta the puter chair … good luck… We hope to see more of you online soon!

They want to see how he does with out it being used for 6 months, the big test will be if he’s ever sick.. Since he has that Nissen also, that was for his GERD.. So he would not keep pucking when he was a baby.. It helped him gain weight to slowly come off the vent… Crossing fingers he does good with this and also, that he don’t pull it out him self.. Good thing we know how to put it back in.. I’ve heard other families have to take there children to clinics for the changes..

http://en.wikipedia.org/wiki/Nissen_fundoplication

I’m so proud of him!!

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I wanted to say “Thank You” to Amidei Nursing Registry for being such a great home health agency..

http://www.anrnursing.com/

please stop by and have a look.. Its also, being set up with pages and links..