7-2-08: Cody is 7 Months old!!

7-2-08:  Added Page  Mikala & Cody & Page 43..

updated:

Cody's milestones :Big thank you to C.C.M.H. : Dakota's Room :Mikala's Page

 

 

6-22-08  Updated site with more pictures of Cody. He is doing very good, and is the discharge date is getting so close. 7-8-08.

 

 

6-10-8 Its getting close to his discharge date!! less then a month away..

we are all done with our training. we have done our 24 hour stay taking care of Cody. Pg 41.

we went to the 20th year ECMO reunion..

updated Cody's Big thank you to C.C.M.H.

 

 

6-5-08: Pictures of Cody going out side in his stroller  page 40.

6-4-08: Cody turned 6 months old 6-2-08 big updates on his improvement!!! PG.40

 

5-26-08: Happy Memorial Day! Dakota now has his 2nd tooth.  pictures Pg.38 & Pg 39.

Big thank you to C.C.M.H.

Cody's milestones updated

5-11-08 ::HAPPY MOTHER'S DAY!!::

Dakota is getting his 1st tooth!! ( on bottom)!!!!

Once we get pictures of his tooth I'll post them.

Pictures added to page 37..

 

5-8-08 Pictures of Cody on page 36.

We are done with all our training!! we did our Trach C.P.R. Class today 5-8-08. read more.

 

5-2-08 Happy 5 Months Cody!! Pictures on page 35.

4-27-08 Added more pictures Page 34.

The training has been going great, (Read more)

4-21-08 More cute pictures of Dakota Page 33

4-17-08 Added pictures to page 33

4-16-08 Added pictures of Mikala to 32

4-16-08 Added pictures of Dakota on page 33

4-15-08 Added page About Dakota

 

4-12-08 Pictures of Cody on page 31. Pictures of his room Dakota's Room

4-10-8 Dakota moved up to the  9th floor 4-9-08/ Page 31 pictures. & Pictures also on page 32.

 

4-6-08 Added more pictures to his 4 month old page.

4-2-08  ( 4 month old pictures) added to page 30

YAH! I can say this was a better Day..
When we got to his room, I gave him a sponge bath, Then me and Sherdell
Did our 1st Trach change by our self's, with no help from the nurse.

While I held him today, we put formula on his right hand and he loved  sucking on his hand.
He wanted more, so we did this 5 times. He was happy..
We are going to do this everyday, till the speech therapist  thinks he's OK, to try the bottle. But a half of a ounce at a time.

Since he has the feeding tube and it's on continues feeding.

We are thinking he just don't like the pacifier and that's something he refuses to let us give him. ( that's fine with us

)Good news.!!  The Doctors are thinking that they can move him to the 9th floor (maybe) Thursday. 4-3-08

 

 

4-1-08 

I got to his room this morning around 10am and stayed there till 4pm, and by then they still had not moved him up to to 9th floor.
Today he was working a little harder breathing even with the new vent. On his trach..
So we hope maybe in the morning or before this week ends. I have been looking forward all week about his moving up. I left his room wanting to cry Sad and the darn hour and a half drive home did not make it any better. I'm so proud of Dakota any way its goes... he's been though so much. And he was in my arms all day.
I know once he's home he'll do even better since I know he needs me so much. It's just so upsetting having to leave him there and go home.
In the morning he'll be 4 months old!! I'm staying strong, but sadly I don't know how all the other mom's do this.. It's starting to really bring me down.. Everyone says god gave us him since he knew we' d  be the best parents to him, some days I think, wow.... He is really testing me. LOL
Since I love this little Angel more then my own life, I thank him for this Gift. I just need him so badly home with us..

 

3-27-08

Cody has been put on a different ventilator (  On his Trach  )  like the one he will be on once home.

This is a big step to coming home. The doctors say if he does good on this new ventilator,

by Tuesday (4-1-08) he will be moved up to the 9th floor. From there we have a lot of learning  how to take care of his Trach,

changing his Trach band, Trach changes weekly ( with out the nurses helping us) how to suction him now with out using the inline suction.

The settings on the ventilator, (If he has a feeding tube) how to take care of it.  C.P.R. class, giving medicines though feeding tube.

3-27-08 Added a new page called Cody's milestones

3-26-08  I have added Easter pictures & a couple from over the week.

Easter pictures on page  page28

Cody in bouncy chair page 29.

3-20-08 Pictures of Cody sucking his thumb. page 27

3-16-08 Cody smiling, He such a happy baby!! Pictures page 26

3-13-08 Cody in a  camouflage out fit, so cute page 25.

3-10-08 Added more pictures from over the weekend page 24

3-6-08 More Pictures of Cody added to page 23.

3-5-08 made a montage for Dakota  .

3-3-08 Pictures of Cody wearing his Trach added  to page 23.

3-2-08

Cody turned 3 months old today!!

2-21-08

Cody's surgery went  well. he's doing good and is sedated.
They have been giving him pain medicine  and medicine to keep him
Sleepy  they don't want him moving around to much.
last Pictures with the ventilator in his mouth page 22. (Bottom of page)

2-20-08 

This morning at 4:00Am, when the nurse was putting the I.V. In Cody's foot, he got

really Mad and pulled the ventilator out of his mouth, Tape and all!!

They then put the C-PAP in his nose, By 6:00AM, they had to put the ventilator back in his mouth.

The nurse called me letting me know what happened.

Around Noon they did the camera down his airways and it looks better then it did 19 days ago,

But, sadly he did not do to good with out the  ventilator, So they have it back in his mouth.

The Doctors do not want to keep the ventilator in his mouth no more, since its making his throat

Sore, plus they want his airways to get stronger with out it, So the next step has to be the Tracheotomy trach (trake)

We are going down tomorrow to see him and talk with the Doctors. I believe that this is going to be done

Very soon, They said the sooner the better, plus he'll be very glad to be away from the ventilator.

We don't need him ripping it out of his mouth again. The nurse said he was very strong and could not

Remove his hands from the E.T tube.

2-19-08  Pictures added to page 22

In the Morning (2-20) the Doctors are going to take a small camera down Cody's nose to his throat to check on his  Floppy air ways. They are looking to see if it has improved since 4 weeks ago, They want to also try again to see how he does before having to do the Tracheotomy trach (trake) Plus they want to avoid having to put the ventilator back  in his mouth.

Info found on the Internet about Tracheomalacia and Bronchomalacia.

 ( floppy airways)   E Medicine

 

2-14-08 8:00PM This is the 3rd time off the ventilator, he did nothing but, fight the doctors and nurses.
It took 2 Nurses to hold his arms and legs still while they put the C-pap in his nose This time it did not go so well,
he only lasted a hour and they had to put back the ventilator in his mouth.


2-14-08 8:45AM.
Today they are removing the ventilator from Cody's mouth!!
To see how he does, they would then have the tube one in his nose
To put presser on his lungs to keep the lungs expanded (C-pap). He has a feeding tube also. But once he's doing good with out the ventilator in his mouth
They are going to try the bottle..
Please wish Cody good luck on this 3rd time off the ventilator..
If this does not work this time around they are talking about putting a track in his neck,( to help him breath he would still talk fine)
And he'd have to have that until he is 2 or 3 years old. His trachea and bronchus are not wide and that's what is making it hard for him to breath right now on his own with out the ventilator in his mouth, it kind of opens up the air wave. What he has they call
Tracheomalacia and Bronchomalacia. His lungs are still doing great!!

Happy Valentines Day!!

2-10-08 Mikala holding Cody on page 20.

2-8-08 Pictures of Cody sitting up on page 19.

2-7-08 More cute photo's of Dakota.. Photo's on page 19.

2-3-08 Its been one month since Cody surgery!!

 2-3-08 Cody turned 2 months old on Feb.2nd! we spent the whole weekend with him, I got to hold and kiss him a lot =)
photo's on page 18.

1-30-08 I got to hold Cody again and he really enjoyed himself, He loved getting kisses from me and Daddy. Pictures on page 17.

1-29-08 Cody has been removed from the heating bed To a Crib. He just loves it so much and keeps looking around.

 1-27-08 Cody had to go back on the venerator, he still is needing more time. We have videos of
him crying and fighting the nurses today, before he went back on ventilator. Movies of Cody crying on the left..



1-26-08 Dakota has been off the venerator again since Thursday 1-24-08 pictures on page 16.

 1-21-08 he had a great day while we visited him, he slept the entire time.

 1-19-08 Cody dressed up in cute outfit, and Daddy holding him.

1-16-08 Update, we just called to check on Cody.. Around 6:45pm
He has taken a step back, He is back on the ventilator( the one in his mouth)
He got really upset this afternoon and clamped down/tensed up,

He never stopped breathing, he tensed up and refused to breath.
We don't know why he did this, or what upset him.
Please keep up the prayers.

1-14-08 We are so happy Cody is now off the ventilator. He is breathing 100% on his own!!!!
He has the feeding tube now in his mouth. The tube though his nose is
To relieve the presser on his lungs. He can now cry and express his feelings.
The nurses are calling him a wild man, LOL.

 1-11-08 I got to hold Cody today......
He's doing very very Good!! The Doctor said in 2 days the ventilator is going to be coming out he is doing
100% breathing on his own.
He has had the arterial lines in his neck removed and the one in his right hand removed.

 1-08-08 Cody's been doing really good, he has a feeding tube now and also is doing most of the breathing
on his own with the back up of the ventilator. still baby steps, The Doctors are really happy with how he Progressing.

1/4/08 now over 24 hours after his surgery and he's still doing great!

1/3/08 GREAT NEWS!! Cody had his surgery this morning and is doing great..
The Doctor said that the hole was much bigger then they thought and that he is a very lucky baby, he made it this far!!!
Also, he has the full right lung, and from what the doctor could see has more then then just a bud for the left lung!!
they are going to be doing a x-ray soon to see how much of the left lung he has..
please keep the prayers going, they are still needed......

01/01/08 Cody is getting his surgery Thursday 01-03-08!!

12-31-08 Cody lost all the extra fluid that was in him..

12-13-07 Cody has been taken of ECMO! Only 9 days on it