Cody’s clinic went great today, hes now off the vent 3 hours in the am and 3 hours in the PM. They say by the end off the summer he should be off the vent all together!!! They take it slow during the winter months. His pulmonary has improved a great deal. They say he’s a very strong little boy, and just doing great with weight gain …. 2010 is a great year!!!!
Once he’s been off the vent for 3 months, he would then have to stay @ children’s for 48 hours or more. With a patch
Over the trach stoma. ( trach out) to see how he does just using his nose and mouth..
Then if all goes good……BYE< BYE TRACH!!!!
What a great year!!!!!!
Love, Beverly
Some other news is the Respiratory department and other doctors are wanting to get a couple kids video’s of there
Long journey from the N.I.C.U- or peds. Though toddler hood or older, To send to D.C. To show that the kids do much better
Getting care @ home with family’s, plus home nursing. Then just being in a bed at the hospital.
Of course there is more to this. That’s just part of it.. Unless the kids are to sick..
Cody has come such a long way since he’s been home. This would of never happened if he was placed in a nursing home for kids, or stayed in the hospital. The good news is they want to use Cody also… They are going to use his web-site, his home movies and info
About him..
One video I did the other dayy
This is just awesome!!!! I loved the idea since now the top people in Washington will now also learn about CDH..
Wooo-hooooo
I’ll keep you all updated
Love, Beverly